We
are inviting Obstetricians and Gynecologists, Radiologists, MFM,
Sonologists and Geneticists to join our association by
contributing cases to the IRONFAN database. Every additional
case contributes significantly to the Registry.
Your
cases will permit the achievement of additional outstanding goals
such as:
1)
establishing time-oriented models of the probability of
detecting and missing certain fetal malformations and syndromes,
according to the presence or absence of certain sonomarkers at
different gestational ages.
2)
categorize the 300 different types of fetal anomalies according
to the IRONFAN Classification:
CLASS
1 - Anomalies with early onset at constant gestational age.
CLASS
2 - Transient Conditions
CLASS
3 - Anomalies with Variable Onset or Potentially Unstable
Anomalies
CLASS
4 - Late Onset Anomalies.
(See
Ultrasound in Obstet.Gynecol 10:6,1997; 373-374),
3)
expansion of our 8-16 weeks database to 16-40 weeks.
Submission
of unpublished cases will not compromise any academic or
educational use you may make of your own material. On the
contrary, most articles in the previous cited journals were
published after they were submitted to the IRONFAN and were
deemed worthy of rapid publication.
To
incorporate your experience with fetal anomalies detected at the
8-16 weeks MA sonogram in our database, we would be grateful if
you would report your cases on the attached IRONFAN
QUESTIONNAIRE.
If
you are an MFM specialist or ultrasonologist associated with a
high risk OB center or a Radiologist specializing in obstetrical
ultrasound and would like to become a test site for the IRONFAN
Fetal SonoMapping™ Database, please report your experience
using the questionnaire and check the appropriate box as
indicated bellow.
IRONFAN
data will be made accessible to our contributors through an open
world-wide scientific e-network for prenatal data acquisition
and review.
Thank you in advance for for helping us to build this new
form of
collaborative medical research – diagnosis in a network
environment.
Shraga Rottem M.D.,
D.Sc.
John M.G.van Vugt
Director
Secretary
QUESTIONNAIRE
Part I: 8-16
Weeks
This Electronic
Questionnaire will be activated soon . Please download the Word Document
of the Questionnaire and Email/Fax it .